Alberta tot in need of miracle treatment

Money is being raised for a $2.8-million treatment for one-year-old girl

One-year-old Harper Hanki was diagnosed with a genetic disorder almost nine months ago.

Spinal Muscular Atrophy-Type 1 affects the muscles that control movements such as head control, sitting, crawling, and in severe cases, swallowing and breathing.

The drug company Novartis is seeking approval for its single-dose IV treatment called Zolgensma, and the green light could come as early as year end. However, provincial funding for the drug could take up to another two years following federal approval.

Zolgensma is only prescribed to children under the age of two, because the sooner treatment is given, the more effective it is at preventing irreversible muscle damage.

The Hanki family doesn’t have time to wait for provincial funding, and is facing a $2.8-million bill for Harper’s treatment.

Family friends are raising money for Harper through an ongoing bottle collection in the Wetaskiwin area and beyond.

“We have twins who are not much younger than Harper, so it hit close to home,” says Brianne Goddard.

“We had to do something,” says husband Chris Goddard.

The Goddards have a trailer, and say that given enough notice, they are more than happy to come to people to collect the bottles within the week.

From there, the funds will be donated to the Hanki family, with hopes of raising enough money for the lifesaving drug that Harper needs.

“You can sell everything you own and not even come close,” Chris says about the overwhelming price of the drug.

However, “If 300,000 people give $10 a piece, she’ll live beyond two.”

Right now, a GoFundMe campaign for Harper sits at just over $155,000, a small dent in what needs to be raised.

To reach out to the Goddard family for bottle collection, call 780-243-2744. For more information on how you can help, visit

Like us on Facebook and follow us on Twitter


Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

UPDATED: Red Deer has nine active COVID-19 cases

Number of cases increased by 107 Friday

“My world exploded,” says Bentley-area farmer who’s swather was struck by a motorist

Dennis Duncan was a mile from home when his swather was struck by another travelling at high speeds

Man sentenced to 7 years for gas-and-dash death of Alberta gas station owner

Ki Yun Jo was killed after Mitchell Sydlowski sped off in a stolen cube van without paying for $198 of fuel

New owners of Sylvan Lake Canadian Tire looking to be big part of the community

Randy and Alison Patton are the new owners of Sylvan Lake Canadian Tire

Alberta shifting to ‘targeted approach’ to asymptomatic COVID-19 testing

Alberta’s central zone down to 29 active cases

Notley to stay on as Alberta NDP leader for 2023 provincial election

The NDP took almost all of Edmonton but few seats outside of the city

Wetaskiwin RCMP make arrests for Hit and Run to residence

Damage estimates are expected to be in excess of $20,000.

Young Canadians have curtailed vaping during pandemic, survey finds

The survey funded by Heart & Stroke also found the decrease in vaping frequency is most notable in British Columbia and Ontario

B.C., Alberta sending nearly 300 fire personnel by Friday to help battle wildfires in Oregon

Some 230 firefighters, most from British Columbia but including a number from Alberta, will be deployed Friday

Death of mother grizzly a ‘big loss’ for bear population in Banff park: experts

The bear, known as No. 143, spent most of her time in the backcountry of Banff

U.S.-Canadian border closure reportedly could extend through November

The border between the two countries has been closed to non-essential travel since March 21

Threat of fall federal election eases as COVID-19 cases continue to rise

Congeniality emerged as fears of second wave of COVID-19 were heightened after another case increase

Most Read